What family members of those who have fibromyalgia need to know

This post is aimed at relatives and the close circle that surrounds people with fibromyalgia.

Although Fibromyalgia is not noticeable, it is very real. Many people think that a person is not really sick unless they look sick. When you have fibromyalgia, the person can be full of health (on the outside), but inside a procession of terrible terrible symptoms.

Fibromyalgia is a difficult disease to understand. Although there is no cure, it can be managed to have quality of life. As all cases are different, treatments such as exercises, medications or therapies do not work equally well for everyone. It is a constant search to find what works best for you.

Do not let appearances deceive you. Often relatives may have the perception that the person with fibromyalgia is not making enough effort to feel better, because they do not eat well or do not exercise enough. The truth is that every effort that is made, no matter how small, is a job or sacrifice much greater than it would cost to make someone healthy.

Fibromyalgia is not a psychological problem. Many people think that it is impossible to have so many heartbreaking symptoms, and that nothing comes out in their medical exams, so they often attribute this condition to a problem of psychological origin. And it is important to know that there is enough scientific evidence to prove that it is a real condition.

With fibromyalgia, life can change completely. It is natural that the person with fibromyalgia can no longer do the same things as before, or that they need a lot of help from their relatives to be able to do them. This can involve from modifying habits to having to change jobs.

Fluctuation in activity levels is normal. A person with fibromyalgia may be very active for a day, as another day may not even get out of bed. The person is not lazy or pretending to avoid work. There will be days when your amount of energy will be very low. Fibromyalgia is a disease with many ups and downs.

The person with fibromyalgia lives in permanent suffering. Even if you do not express it constantly, you always feel pain throughout your body, exhaustion, and many external stimuli, such as smells, noise, lights, weather and other factors, can make your discomfort worse. Try to put yourself in his place all the time so you can understand him.
Sometimes the person with fibromyalgia avoids physical contact. You can experience a lot of pain with non-painful stimuli such as hand grips, slaps on the back, touches on the arms and shoulders, and even with a strong hug, in general, any touch that produces friction or friction. No one should be offended if at any time, it is about avoiding this kind of intimacy.

Author: Fibro Warrior

3 thoughts on “What family members of those who have fibromyalgia need to know

  1. Just a suggestion, and not meant to offend by any means. It would help your articles to have some grammatical editing. Perhaps this is written by someone who speaks English as a second language. Some minor grammatical adjustments would make this flow more smoothly.
    That said, I so enjoyed this article and agree with everything documented here. You touched on all aspects of fibromyalgia. You have provided a pretty good overview of what fibromyalgia sufferers would want their friends and family to know. I enjoy this site and hope to see more articles like this, as well as treatments being investigated to help symptoms of fibromyalgia

  2. Thank you for taking the time to put this article together. It provides some valuable insight for those close to the sufferer, providing a better understanding of what it must be like for the person concerned.

    However, I do have a suggestion…

    Maybe you may want to look at having someone proof read your articles before publishing them online.

    It makes it difficult to read and difficult for the content to be taken seriously when there are a multitude of typo’s.

    Warm Regards.

  3. Please get past the editing and concentrate on the article. I have 2 adult children with this debilitating illness and for them life is a nightmare! For my husband, who walks with crutches waiting for a new knee and has a back injury and I, this illness has affected us too. We unconditionally support, help, understand, love and care for our adult children trying to help them enjoy some type of life. Our family also don’t understand this illness and we give up trying to explain it as they tend to shrug their shoulders and move on so we tend not to discuss it. Please do more research as these sufferers need heaps of support medically, emotionally and physically but as mostly the illness restricts what the sufferers can do NO BODY sees. The suffering of so many!

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