16 Ways to Imagine What Fibromyalgia Disorder Feels Like

1. “Imagine the worst sickness, fatigue and pain and your head is in a deep fog where it made you think to go to the hospital. Now imagine feeling like that every day and knowing if you go to the hospital they will likely find nothing wrong and send you home and tell you to see your family doctor. That is Fibromyalgia Disorder.

2. “Imagine waking up in the morning feeling exhausted, as if you hadn’t slept in days. As you lie in bed, trying to rustle up the energy to get up and make your way to the bathroom, you wrestle with the thought: ‘Can I make it through another day?’ Then imagine that everything you do, even the smallest tasks, feels like you are walking through waist-high wet concrete.

3. “Picture a phone. There’s something wrong with the charger. No matter how much you try to charge it it never charges past 50 percent, if you’re lucky. You close all the apps so you can to try to preserve battery, but it’s no use. It quickly drops back down to zero percent in no time. Now imagine you’ve been hit by a bus, and you are the phone.

4. “I tell people, ‘Do you know how you feel when you have the flu? Body aches all over, everything hurts even your hair and nails? Yea, those are my good days.

5.“Think of the worst flu you’ve ever experienced, and pair that with falling down three flights of stairs, straight into a beehive. That’s Fibromyalgia Disorder.

6. “For me Fibromyalgia Disorder is fuzzy and foggy thinking and on a bad day moving feels like I am trying to walk through thick Jell-O. Doing normal things causes pain. Total exhaustion without the benefit of restful sleep.

7. “It’s like your body was in a car accident while you had the flu and you never quite got over either one of them.

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8. “The worst thing about this illness is you can’t [imagine it]. There are way too many symptoms that I think people get lost after you list the first 10. That’s often why people with fibro feel so isolated and turn to the online community to find people who understand it.

9. “Sometimes when I take off my clothes and look in the mirror I expect to see bruises everywhere because my body hurts and aches so badly. Then there are times where I wish I bruised all over because then people might take my pain seriously.

10. “Imagine being wrapped in a burrito by a blanket made out of those massage chairs with the balls in them. Except you never know how many are going to be pressing down on you or where. Some days its like the deepest muscles in my body are getting repeatedly punched, while others it feels like my skin is raw. All the while I can’t think straight, like my oxygen is running out from being crushed under the weight and pain.

11. “My body either feels it’s been hit by a truck or other days somebody has a voodoo doll sticking pins in and twisting them with Fibromyalgia Disorder.

12. “Pain so extreme that you feel like vomiting. It’s hard to think, eat, sleep or do ‘normal’ things. Your sensors are off. It feels like noise sounds in a cave, everything echoes. Smells bother you. Lights hurt your eyes and you feel dizzy like a carnival ride.

13.“It’s the ‘Princess and the Pea’ syndrome… every possible sensation is heightened. Being on a bridge or near an escalator feels like an earthquake. You smell things that no one else does. And you can’t tune out things like buzzing lights.

14. “Like getting Charlie horses in muscles you didn’t even know existed. When you go out to eat, you constantly squirm because the seat hurts your back. You’re always tired, and even a full pot of dark roast coffee won’t fix that.”

15. “It’s like the day after a strenuous workout, with the stiff, sore muscles. Add a sunburn and a headache, then the flu on top of that. Fibromyalgia Disorder fatigue feels like your blood has turned to cement in your veins.”

16. “I sometimes have severe Fibromyalgia Disorder episodes that feel how it feels when you touch a battery to your tongue when someone dared you in your younger years. It’s feeling that for a constant hour or so before pain meds kick in.

Source: fibrowomen.com

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12 thoughts on “16 Ways to Imagine What Fibromyalgia Disorder Feels Like”

  1. When I first began my partnership with Fibromyalgia Disorder, I thought I was to avoid all that made the pain worse. It hurt something awful to chew my food so everything got thrown in the blender. It still caused discomfort to swallow….no biggie in comparison. Fibro fog made doing what needed to be done impossible. I would sit to watch a movie on the VCR. Once it was over I’m not sure what I did but I can remember deciding to watch a move again. During the last scene, I realized that I had already watched it. This went on for several showings of that same movie!!! I can look back and see a lost soul. I can’t take pain pills(, not even OTC ones)except Gabapentin. Never a vacation from this relentless Fibromyalgia pain and foggy brain.

  2. Exactly. Well put. I have been to doctors upon doctors…and they just look at me. Then send me to another doctor. I am in excruciating pain 24/7. I am Med sensitive so it is very hard and scary to keep in trying all their meds. God please help me.

  3. I thought I was losing my mind or that maybe I had suffered a stroke in my sleep because simple words would not come to me, I was always in a fog, I forget things so easily. Come to find out… it is FibroFog.

  4. Chinese burns in all the muscles at the same time…… when I get some sleep 10 minutes before I fully wake I realise my life was not a nightmare it’s real and forever. I know how to deal with arrogant Drs they will only cross me once don’t be nice to them if they are not nice to you…. God bless

  5. This is so true!Never said better than this.This is what my good days feel like. I just keep my head up and wait for some type of a breakthrough.

  6. I have had Fibromialgia since 2007. The pain was bad back then but now the pain is actually incredible
    and very real. I’ve also added a lot more symptoms to my fibro list of pain. It has robbed my life and I frequently mourn my old life of kick boxing, photography, motorbikes, companionships etc etc.

    This debilitating chronic disease is absolute hell and still no-one knows why we are all dying a slow death. As I said fibromyalgia has stole my life, relationships, friendships, last but not least my future etc. There is no future.

  7. This is true. I have never been able to explain to loved one how i feel. They can be talking to me and i just can’t understand them. I crawl into bed when pain meds are working and lay there dying slowly not sleeping just existing.

  8. I woke up to a nightmare. I had to resign from my job because my fibromyalgia was so severe that I had days that I couldn’t walk. I take 18 pills a day to function a little bit. The sad part that Doctors look at you like you have three head and think you are exaggerating. Or they tell you I can’t do anything because you already drink so much medication. So you feel that there no hope for this disease. Hope that someone from the medical field can recognize this disease and understand the pain & suffering we go through on a daily basis. Thank you for letting me comment on this topic. Rachel Ramos

  9. I feel your pain. Now imagine being a big strapping man and trying to express these symptoms to your friends and family. People just do not understand what it is we live with every moment of everyday. Thank you for publishing this, now I can forward it to the few who actually have tried to understand what my days are like now.

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